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Get Involved

FSUK is dedicated to championing the advancement of research, education and resources for Fowler’s Syndrome. We raise funds to deliver innovative, breakthrough research and support programmes that enable those with Fowler’s Syndrome to live happier, healthier and longer lives.

There are plenty of ways you can get involved with FSUK and support our work to help women suffering from this terrible condition.

Become a Fowler’s Fox

Sign up here for the latest news from FSUK, including fundraising, research, resources and more.

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Donate to FSUK

Help fund a better future for women with Fowler’s Syndrome. £10 will help us produce specialist leaflets on Fowler’s Syndrome. £15 provides psychological support for the 75% of patients that have anxiety due to the condition.


Fundraise for FSUK

As a small charity with big ambitions, we rely on fundraising to be able to operate. Could you or your office support us in 2024? Click below to fundraise for us.


Share your story

We would love to share your story.